Category: health and wellness

Friends for Life

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It was late February of 2020. Todd, a good friend from Chicago (we sang together with the Windy City Gay Chorus for several years), was visiting Tom and me here in the Valley of the Sun.

While he was in town, we enjoyed creative conversations about books, films, and music. Visited Frank Lloyd Wright’s Taliesin West studio/architecture school in north Scottsdale. Hiked in the desert at Papago Park. Saw Beautiful–the musical about Carole King’s life–in Tempe.

Me, Tom, and Todd hiking at Papago Park in February 2020.

Of course, a few weeks after Todd returned to Chicago, it felt like there was nothing beautiful to celebrate. The world shut down. Thousands died quickly. Waves of fear, disease, uncertainty, and grief inundated all of us.

Friends and families–isolated from each other–found creative ways to pass the time. Some of us wrote books that included stories about the experience. We prayed we would survive.

Now, in March 2023, many elements of our pre-Covid lives have returned thankfully. But my sense is that as a culture we Americans would prefer to pretend Covid-19 never happened, in spite of the mountain of evidence and losses that tell us otherwise.

No doubt, it will take years for all of us–no matter where we live–to recover emotionally.

Still, the good news is most of us did survive. We’re finding ways to reengage with friends and loved ones. To celebrate life. To reignite relationships and make new memories together.

On that score, Todd is returning for another visit next week. Tom and I are excited to spend time with him again. To share new and old movies with him. To discover what’s new in his life since we last hiked together three years ago.

As it happens, Todd’s 2023 visit coincides with the Phoenix Heart Walk on Saturday, March 25. He and Brad (another singing friend who I met performing with the Phoenix Gay Men’s Chorus) will walk with Tom and me.

I’m thrilled that they will both join us for a Saturday stroll in the sun to raise funds for the American Heart Association (AHA). Every dollar will help fund groundbreaking research to keep hearts beating and build longer and fuller lives.

When I told my AHA contact, Karen, that a friend from Chicago would be walking with us to raise money for the cause, she suggested I name our team. As I was jogging on the treadmill yesterday, the name Friends for Life came to me.

After all, it is friends like Todd in all circles–Arizona neighbors, Chicago friends, fellow performers here and there, family members, yoga pals, film enthusiasts, writing colleagues, professional advisors, gym buddies, etc.–who enrich my world.

Many of them (from Arizona, Florida, Illinois, New York, and Tennessee) followed my lead and have already made donations to the Phoenix Heart Walk.

I am eternally grateful for their support, because–as you know if you follow my blog–heart disease is personal for me. I am walking on March 25th as a tribute to my mother and father, who died of heart-related illnesses and, symbolically, to thank the doctors and nurses who saved my life and helped me recover in 2017 after I suffered a heart attack on the way west with Tom.

Please click on the link below and support this worthy cause. Every little bit helps. Because, unfortunately, heart disease is universal. It remains the number one killer in our nation.

http://www2.heart.org/goto/friendsforlife

Yet it is the love extended from our hearts … and the friendships formed with people all across the country (and with those of you all around the world who have bonded with me through this page) … that make life so meaningful.

Whether you decide to contribute or not, remember this: you can make a difference by giving your time, talent, and money to the people and causes you are most passionate about.

Every Heart Tells a Story

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On March 25, 2023, I will participate in the Phoenix-area Heart Walk, sponsored by the American Heart Association.

If you follow my blog, you know I am a heart attack survivor. You may not know that both of my parents died of heart disease: Mom on January 26, 2013 (almost ten years ago); Dad on November 26, 1993 (nearly thirty years ago). Both Helen and Walter appear frequently in my published stories.

One of my favorite photos of Mom and Dad, celebrating her twenty-sixth birthday on July 26, 1949, at a restaurant in Texas.

Obviously, heart disease is personal for me and millions of American families. I hope you will consider making a donation to support ground-breaking research that keeps hearts beating and enables other unsuspecting victims of heart disease and stroke (like me) live longer and write new chapters.

As an added incentive, if you click the link below and donate $30 to the American Heart Association, I will sign and send any two of my books (your choice) to you. I’ll pay the postage and include two of my personalized bookmarks.

http://www2.heart.org/goto/Mark_Johnson_HeartWalk_2023

Thank you for your kindness and consideration. Every little bit helps.

Our Hearts Beat as One

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Sadly, today is another day that 2,396 Americans will lose their lives to heart disease — America’s #1 killer.

I know the personal pain of heart disease. If you follow my blog, you know I’m a heart attack survivor. (I wrote a book about that trauma, which happened on my sixtieth birthday).

Fortunately, by changing my diet, losing weight, exercising regularly, practicing yoga, sharing my story of survival, and following the recommendations of my cardiologist, I now lead a much healthier life.

I also remember our family’s difficult plight after my father suffered a heart attack sixty years ago at age forty-nine. Though he lived another thirty years, he was never quite able to regain the vigor and enthusiasm of his pre-coronary life.

This year and next I am focusing my fundraising and volunteering efforts to help the American Heart Association (AHA), culminating with the Phoenix-area Heart Walk on March 25, 2023.

Today–on this Giving Tuesday–I’ve already donated $250 to the AHA (which includes the 2022 royalties I have earned on all four of my books).

Join me in making a difference by clicking on the link below and contributing to the Phoenix Chapter of the American Heart Association. Until midnight tonight, every dollar you give will be matched to be worth twice as much.

The dollars you give will go to important scientific research that will help save the lives of babies born with heart defects and adults coping with life-threatening heart disease.

I really do believe that our hearts beat as one when we share our time, money, and talents. No matter which charities you chose to support, thank you for the difference you make in your community on this Giving Tuesday … and every day.

American Heart Association Heart Walk

WWW2.HEART.ORG

Royalties with Heart

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I confess. Like many independent writers, I dream of dozens of rave reviews online from readers and a steady stream of royalties.

But that rarely happens. Most of us are not that fortunate. It doesn’t mean our books aren’t worthy of praise and financial rewards. It just means that it is difficult to remain visible and compelling without a marketing budget. The literary competition runs wide and deep in the Amazon distribution ocean of new and old releases.

Even so, behind the scenes–when someone buys one or more of my books on Amazon–royalties appear on my author dashboard and land magically in my checking account a few months later.

It isn’t the amount that makes me happy. (It’s usually a trickle, no more than five or ten dollars, though in a rare month the dollars can spike higher.) It’s the acknowledgement that someone continues to derive value and meaning from one of my “very creative, heart-warming stories.”

That phrase in quotes is the way the staff at Barnes & Noble in Mesa, Arizona describes my books on their shelves. When I saw this, I felt honored because the motivation for my writing comes from my heart and the myriad of emotions–love, loss, happiness, discontent, hope, disappointment–we all feel.

Recently, a development director with the American Heart Association (AHA) in Arizona asked if I would be an Executive with Heart to help raise money for their 2023 campaign. Without hesitation, I said “yes.”

Technically, it runs from February 1 through March 24 and concludes with a Heart Walk in the Valley of the Sun. But on “Giving Tuesday” this year (November 29) I will donate the $200 in book royalties I have earned in 2022 to the AHA to help support the fight against heart disease and stroke. An anonymous donor will match that amount.

Ironically, in the coming few months, I will remember both of my parents who succumbed to heart disease. My dad died after suffering his second heart attack on November 26, 1993. It was the day after Thanksgiving twenty-nine years ago. My mother passed on January 26, 2013–nearly ten years ago on a frigid Illinois morning–due to congestive heart failure.

In their honor, I will increase my $200 donation to the AHA by $10 for every purchase of An Unobstructed View between now and November 29. In case you don’t know, the book is a personal account of my transformative journey with Tom, moving from Illinois to Arizona in 2017 and navigating a frightening detour in St. Louis in between. It’s my heartfelt story of survival.

I hope you’ll purchase a copy for yourself or a friend. When you do, you will fill my heart with joy and benefit others–like me–who are building strong hearts and longer, more meaningful lives.

Over the next few weeks as we celebrate the Thanksgiving holiday in the United States, I encourage you to also give thanks for those you love and those who love you … and the heart that beats inside you every moment of every day.

My Fortunate Life

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I lead a fortunate life. I don’t mean that in a material, financial or social sense; like many of you, I am concerned about inflation, the bear market, high gas prices, potential fall-out from the mid-term elections, and global and domestic horrors eroding personal freedoms, savings and investments, and a general sense of security for you and me.

Still, I acknowledge I have more to be thankful for than most people: a modest-but-comfortable home in a warm climate; a loving and supportive spouse; two adult sons who are gainfully employed and contributing members of society; a diverse community of friends; and the time to pursue and develop my literary and musical interests.

Plus, I’m a relatively healthy, sixty-five-year-old male. I make it a priority to exercise regularly, eat smart, and see my doctors as needed. Though it’s been more than five years since I suffered a mild heart attack, I haven’t forgotten the trauma of July 6, 2017, or dismissed the gratitude I feel for that team of doctors and nurses at Barnes-Jewish Hospital in St. Louis, Missouri–people I likely will never see again.

That painful experience no longer defines me. It has paled somewhat. Yet it informs my choices, perspective, and sense of gratitude. It has morphed into a badge of survivorship, which I feel an obligation to share with the universe through my writing and day-in-day-out personal encounters.

Occasionally, I receive a fund-raising or participation request from an Arizona contact with the American Heart Association (AHA). We met in 2018.

A few weeks ago, she asked me to share my story of survival–virtually–with employees of a large retail organization on October 17. To explain that donations to the AHA aid lifesaving research that allows heart and stroke survivors–like me–to enjoy longer and more complete lives.

So that’s what I’ll be doing on Monday. Twice … once in the morning; once in the afternoon. Telling my story of survival in three to five minutes to a large group of employees via video conference.

I figure it’s the least I can do to pay it forward and possibly ease the pain for some other unsuspecting man or woman, who with the help of the AHA might live longer, breathe more easily, and witness a few more breathtaking sunsets in the Valley of the Sun or elsewhere.

On October 5, 2022, I captured this Sonoran sunset in Papago Park on my walk with Tom a mile from our home in Scottsdale, Arizona.

Setup Complete

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A delivery man handed me a box at my front door on Thursday. Inside was my new Samsung phone. It includes a lot more memory and features than my previous model.

“Great. No big deal,” you might think. “After all, we live in a world where techie products and capability change every few minutes and many people buy a new device every year or so.”

But I object, your honor. It is a big deal for this guy.

This is not a purchase I make frequently. It’s not so much the cost. It’s the drama and tumultuous change required. And, when I make such a change, I need and expect support to pull me through the uncertainty.

It’s the fear of losing all my contacts and photos that I don’t want to send into the cloud (wherever that is) that amps up my anxiety from “reasonable human being” to “caged animal.”

Let’s peel a few more layers of the emotional onion.

***

On July 9, 2017 (yes, more than five years ago!), Tom and I bought my previous Samsung phone at a Verizon Wireless store in St. Louis, Missouri. We were between homes at the time, on our way west from the Chicago suburbs to Scottsdale, Arizona. I was fresh out of the hospital.

More background. On July 5, 2017, somewhere in Southern Illinois, my previous phone died. Strangely, the next morning–it was our 60th birthday–I suffered a mild heart attack in St. Louis.

My husband and the medical staff at Barnes-Jewish Hospital in St. Louis saved my life. Tom got me to the hospital lickety-split. The cardio team performed an angioplasty. They found an obstruction in the left side of my heart.

The next day, once my blood pressure was stable, the team installed two stents in my heart. Remarkably, I left the hospital two days later with a new lease on life, no cell phone, and a story that would become my third book: An Unobstructed View.

Tom and I bought a functioning phone the following day in the city where I was born in 1957.

***

On Friday, I drove to a nearby Verizon Wireless store in Tempe, Arizona, with my new phone. Two representatives–one in person, another via live chat–had told me Verizon would help me transfer my data and activate my new phone.

But Verizon left me high and dry.

When I walked in the store to describe what I needed, a young representative told me they didn’t/wouldn’t do that. My anxiety and anger soared. After a volley of choice words, I announced “I’m outta here.”

I left the store an emotional wreck.

When I arrived home, Tom tried to console me, but I was inconsolable. He suggested I contact Geek Squad at Best Buy. We have a total tech support plan there. I made an appointment.

On Saturday, I arrived at Best Buy, in the same Tempe Marketplace mall where the Verizon debacle occurred. Over the next hour, the Geek Squad team activated my phone and helped me transfer my data.

All three “blue-shirted” technicians, who assisted me, treated me with respect. Like the medical team at Barnes-Jewish Hospital five years ago, they restored my hope in human care and kindness.

***

Think about it. Like the fragility of our personal health, and the heart that ticks inside us, so much of our world is tied to this one important item we carry in our pockets (instead of our chests).

When that one thing (heart or phone) becomes vulnerable, so are we.

Fortunately, my phone setup is complete now. It feels like I have my life back. Tomorrow (Monday), I see my cardiologist for my annual checkup. My ticker is strong. I’m in much better shape physically than I was five years ago. I expect a good report.

Reentry

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On Tuesday, April 26, 2022–the day Vice President Kamala Harris tested positive for Covid without symptoms–I did too. But with symptoms: fever, headache, congestion, and fatigue.

Ironically, it was also about the same time Dr. Anthony Fauci declared we had crossed the pandemic bridge and entered an endemic world, where the disease rate is at an acceptable or manageable level.

At that moment, I don’t think I believed him. There was nothing acceptable about the situation for Tom or me. As you might suspect, my husband soon developed the same symptoms.

For the following week, Tom and I took turns playing nurse, while pumping a flurry of fluids, acetaminophens, decongestants, and attaboy encouragements.

We slept sporadically, texted my sons and our sisters, cancelled plans with friends reluctantly like two men waving from a desert island, and zapped each other endlessly with our digital thermometer–up to 102.3, down to 99.6, up to 101.2, down to 100.2, finally back to 98.6.

We rode out the storm together, quarantining in the privacy of our cozy desert condo. Two kind friends left wonton soup outside our front door, as they were dealing with their own trauma of repairing their car so they could drive east. Back to their home in New York.

Another sweet neighbor placed a bar of chocolate on the mosaic tile table between our two wicker chairs. I snatched it as soon as she left. She knows about Tom’s dark chocolate addiction and my wedding vow in 2014 to keep him supplied with a bottomless supply of it.

Through it all, I think you could characterize our Covid cases as mild, though my anxiety flew through the roof for seven days. I shuddered to think what the outcome might have been.

What if we hadn’t been fully vaccinated and boosted twice? What if I could never see Tom’s smiling face again or gaze into his beautiful blue eyes that nearly match the bluish-gray t-shirt I gave him that doesn’t fit me anymore?

***

About a million Americans have died of Covid complications.

We are two of the lucky few. But this isn’t a story about luck. It’s about truth and science.

The vaccinations we lined up for protected us, kept us out of the hospital, and forestalled any notions of two more premature deaths. By following the science and getting inoculated, we dodged two bullets. The universe rewarded us exponentially by giving us more time together.

This morning it feels like we are both back to normal. We’ve been symptom free for several days. We returned to the gym for the first time in nearly two weeks. I mounted the treadmill. Tom opted for the elliptical. I smiled as I watched Tom exchange his hellos with a community of patrons and familiar faces.

But earlier in the morning–when I leaned out the front door to water our succulents under the fig tree–there was a defining moment with an extraordinary animal, which I won’t soon forget.

Our feral friend Poly, the community cat that has lived on the fringe of life for a long time, meowed and came closer to me than she ever has. After a brief photo opportunity, Tom handed me the bag of cat treats and I sprinkled a dozen or so on the sidewalk.

Once I closed the door, Poly left the shelter of our eaves–safe in her own moveable, quarantining bubble–and approached the kitty kernels.

Unceremoniously, she glanced up at me as if to say, “I understand how you feel, all worried and frayed. But you’ve made it through. You’ll get by. You’re a survivor. Just like me.”

A New Creative Wrinkle

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I am especially conscious of my age and vulnerability right now. There is nothing worrisome to report. I feel well. It’s just that–early in 2022–Tom and I are focusing on important administrative tasks to protect ourselves and our families.

Specifically, we will move to Medicare later this year, because we turn sixty-five in July. We have begun to do research. We’ve met with a third party. She explained how it works. She has helped to cut through the mystery. (By the way, I used to help organizations communicate about complicated health care and retirement programs, but that background doesn’t make this transition any easier.)

We also are updating our estate plans to make certain they reflect our Arizona status and latest wishes. The pandemic isn’t the driver, but it certainly has amplified our efforts to make sure our affairs are in order. As much as I hate dwelling on my mortality, it makes sense to plan ahead.

All of this technical and legal blather has clogged my brain lately, leaving me feeling a little dim. Is it a coincidence that the light in our refrigerator should go out yesterday? I don’t think so.

We tried replacing the old bulb with a new one, but it appears we have an electrical issue. Fortunately, the appliance is doing its job. It’s keeping our food cold (and frozen in the upper compartment). It’s just that we need a flashlight to find the yogurt, milk, eggs, fruits and vegetables.

I digress. That’s not what this story is about. Ironically, in the relative darkness of early 2022–the pandemic and our refrigerator–there’s a bright and new creative wrinkle to my writing that I want to talk about. One which changes the landscape of my past experience. One that goes beyond my blogging, memoir writing, poetry, and occasional forays into fiction.

About eight months ago, Marc–the artistic director of the Phoenix Gay Men’s Chorus–blindsided me with this question: “Would you be interested in writing lyrics for a suite of songs for one of our concerts in 2022? It will be a celebration of diverse voices.”

Hearing these words, I think my jaw may have dropped. Once I closed my mouth and opened it again, “of course!” was my immediate response.

I could feel my smile grow ten sizes. I never imagined having an opportunity of this sort, especially concerning a topic that is so important and personal … turning the painful, transformative, and triumphant stories of Phoenix-area LGBTQA citizens into something more. Into poetry and music.

Since that early, exploratory conversation with Marc, I’ve collaborated with David (another member of the chorus) who is composing the music. I’ve written lyrics for four songs, which will be performed on March 12, 2022, at the Tempe Center for the Arts. The concert will be part of Tempe’s Pride celebration.

On the evening of Tuesday, January 18, this will all become more real. Marc and David will pass out the music to members of the Phoenix Gay Men’s Chorus (including me sitting in the back row and singing second tenor).

For the first time, we will begin to rehearse the music David and I have created. I know I will feel a surge of pride and energy when I see the words “Lyrics by Mark Johnson” in the upper right corner of the score.

Sometimes life serves up happy surprises. It reminds us that our existence is more than needling administrative responsibilities, the darkness of a pandemic, or the frustrations of a burned-out light bulb.

Sometimes the outcome is brighter, more hopeful; we find ourselves exploring a new creative wrinkle, doing something we are passionate about, taking on a role we never saw coming.

Yes–remarkably at the age of sixty-four–I am a lyricist.

The Hopeful Realist

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On the spectrum of optimism to pessimism, my attitudes on a given day place me somewhere in the middle near realism. Though, generally, I maintain an air of hopefulness.

For illustration purposes, I don’t think the world will end tomorrow or the next day, but I do think we have lots of problems to solve. Currently, the pandemic and global warming are chief among them.

Beyond that, the gun violence in this country is insane. (Incidentally, I would mandate that every American see the movie Mass. Released in October 2021, Tom and I watched it last night. It is the most riveting and emotionally honest film I’ve seen in the past year.)

In April 2021, the CDC reported this sobering statistic. For a child born in the United States in 2021, the average life expectancy is 77.8 years. That’s a decline of a full year from 2019 when the life expectancy was 78.8 years. The realist in me says we’re heading in the wrong direction.

For a male born in 1957 (that’s me), the life expectancy is 66.4 years. That’s a daunting number when I consider that I am now 64.5 years. However, the fact that I’ve made it this far (I’m no actuary) and don’t take undo risks (I’m fully vaccinated and boosted and buckle my seat belt), puts me in a position to make it another twenty or so.

Family history tells me that too. My father lived to be nearly 80; my mother almost 90. Plus, I don’t smoke and drink very little. Since surviving a mild heart attack in 2017, I’ve dropped twenty-five pounds and kept it off. I’m fit and committed to a regular exercise regimen that keeps me strong.

Of course, life isn’t predictable really. It’s a sound philosophy and practice to live each day–each moment–as it comes. Yoga, meditation, and a raging pandemic have taught me that.

I spoke with Frances on January 2. She is my mother’s sister and the only remaining relative from either side of my family from the Silent Generation (those born from 1928 to 1945).

Born January 1, 1932 (the first baby in the new year in High Point, North Carolina), Frances turned 90 earlier this week. I called to wish her a happy birthday belatedly. She and husband Paul, also in his nineties, live in Davidson, North Carolina.

Frances is or was the spunky-and-opinionated adventurer in my mother’s family. I’ve always felt a special bond with her. I admire her zest for life. In 2015, I flew to the Tar Heel State to spend a little time with my worldly southern aunt.

The experience helped me heal after my mother’s death in 2013 and finish my first book, From Fertile Ground. I know visiting with me helped Frances too. She loved her older sister, who moved away as a young woman to create a life in the Midwest. Being together gave both of us a chance to complete the circle of our loved one’s life.

The sad truth is Frances is frail and forgetful now. I could hear it in her voice last Sunday. She’s far less sharp, though I’m certain she knew the voice on the other end of the phone line was me. Our conversation was brief and pleasant.

I recall Frances telling me in 2015 that she wanted to live to be 100. I’m doubtful she’ll survive ten more years. Even the infallible Betty White fell a few weeks short of the centenarian status most of us expected she would achieve.

At 90, Frances suffers from dementia. After the phone call, Lu–one of her daughters-in-law–confirmed it for me via text. I wasn’t surprised to receive this news, but knowing it prompted me to feel sad and reflective. My mother lived with cognitive impairment during her final few years.

Lu told me Frances doesn’t remember what happened the previous day. For instance, she doesn’t recall receiving the card and birthday gift I sent, though the United States Postal Service tracking system tells me it arrived safely at her home before Christmas.

At any rate, I’m grateful for the moments I shared on the phone with Frances. “I’m feeling pretty well,” she told me with a familiar lilt in her voice. “My husband looks after me.”

“I’ve always loved you, Aunt Frances,” I said with a hitch in my affirmation. “I’m a day late calling you, but I wanted you to know I was thinking of you on your birthday.”

Frances sputtered in her response. “You mean so much to me, honey.” Though she never mentioned my name during our conversation, the hopeful realist in me thinks she knew it was Mark, the writer.

Somewhere in her past or present existence, I want to believe she remembers that I am her sensitive gay nephew. The one with two grown sons and a husband. The one who survived a heart attack. The one who recounts stories about the people he loves.

Turning Stuff into Wisdom

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I’ve learned a lot in my sixty-four-plus years. Sometimes it feels like my brain is a swirling repository of “stuff” … data and memories.

On other days, it feels like I’ve found meaningful ways to synthesize my life experiences and relationships. Then–voila–I discover they have morphed magically into wisdom.

I’m not sure exactly when this wisdom thing began to kick into high gear, but probably in my fifties after my mother died. Then, certainly again at sixty when I suffered a mild heart attack. In both cases, I had to find my way back to the surface to breathe again and survive the depths of despair.

Most definitely, it is the challenging aspects of life–loss, fear, anxiety, discrimination–that prompt me to more forcefully explore, verbalize and share my opinions and feelings … not the happier, even moments.

I’ve been thinking about this because I have a few friends/relations who are dealing with difficult stuff. One is grieving the loss of a significant loving relationship while trying to find his way in a new job; the others are navigating the precipitous physical decline of two frail parents.

In both situations, I am there to provide empathy and support. I imagine these individuals feel as if they are lost in a dense forest without a compass. Yet, I suspect, the clouds will lift eventually. On no particular schedule, light will begin to filter through. Hope will reappear.

One day, the internalized aspects of loss and pain will spring from the ground like crocuses emerging from the frozen ground of winter. And, a new batch of wisdom will be born and saved for the next difficult encounter of life.