There was a moment on Saturday morning–about two thirds of the way through the Phoenix Heart Walk with my husband Tom, friend Todd, son Nick and his girlfriend Anastasia by my side–when I spotted this young man holding a homemade sign.
His presence and the message along the three-mile route touched me. I stopped to take his picture, hugged him, and thanked him for being there and sharing his heartfelt message.
I don’t really consider myself a heart “hero”, though our Heart Walk 2023 team I “coached” and dubbed “Friends for Life” did raise more than $2,000 in the fight against heart disease and stroke.
Thankful “survivor” feels like a better fit. Especially when I look back on that day nearly six years ago when Tom and I endured our most difficult and frightening moments individually and as a couple.
It was July 6, 2017, our collective sixtieth birthday. After feeling breathless on a humid summer day, I found myself lying on a gurney in the bowels of Barnes-Jewish Hospital in St. Louis.
After suffering a mild heart attack, I waited impatiently for two teams of heart specialists–actual heart heroes–to remove a blockage in the left side of my heart and insert two stents.
Fortunately, since that tumultuous day I have been able to transform my health. With a little luck, thirty fewer pounds to carry, and a lot of hard work, support, and exercise, I’ve lived longer, written more stories, and created a whole new existence in the Valley of the Sun. You can read all about our journey in An Unobstructed View.
Certainly, I’ve come a long way since 2017. Far enough that on Saturday, March 25, 2023–after completing the Phoenix Heart Walk and crossing the finish line–I stood with family and friends on the streets of Phoenix and breathed deep.
Along with the thousands of others in attendance, we “heart heroes” celebrated and embraced a sunnier, more hopeful day.
Me preparing to cross the finish line at the Phoenix Heart Walk.Heart Heroes/Survivors: Todd, me, Tom, Nick, and Anastasia
We are human, not robots. So, we all do it to some degree or another. We reflect on seminal moments that have passed rather than living in the present.
In my case, that means occasionally remembering the full moon, which dominated the January horizon the morning my mother died in 2013.
Or–further back in my psyche–the sweet scent of magnolia blossoms, emerging in late March on the front lawn of my suburban St. Louis childhood home. Often, mother nature tricked them with an early April frost that turned the pink petals brown.
Oddly, when we aren’t contemplating the past, many of us focus on the future. We anticipate significant events–personal and social–that approach.
We ponder pressing issues ahead, such as paying the rent or mortgage when it comes due at the end of the month, speculating on the latest batch of troublesome news on the world stage, or waiting impatiently for medical test results.
Though I am a memoir writer–and soon-to-be-published poet (stay tuned)–once-unforeseen yoga sessions (which I now practice frequently on the aqua mat of my sixties) teach me that I am better off focusing on the space in between the memories and the what ifs.
It is the breathing in and out that keeps me whole as I write this sentence on the keys of my laptop. It is the random chirping punctuating my afternoon in the palm tree outside my back door.
It is the rushing water of life, which currently swooshes through the normally dry Salt River gulch in Tempe, thanks to frequent rains in the Valley of the Sun and melting snow from Arizona’s high country.
At this moment in time, I need to remind myself that it is all of these things–happening now–that make life rewarding and meaningful on an otherwise gauzy Wednesday in March.
It’s March. The Christmas cactus adorning our den is definitely a late bloomer–and so am I. I turned 65 in July, but that number hasn’t deterred me from continuing to write, sing, and create.
When I close my eyes, I can still channel 18-year-old unaware me. Tall and thin with long straight blond hair in 1975. Seated in an uncomfortable wooden fold-down chair. Legs crossed in Middlebush Hall on the University of Missouri campus in Columbia.
I was an aspiring journalism major. One of a few hundred freshmen and freshwomen taking a required business course. Bleary-eyed from guzzling too much beer and demolishing late-night Shakespeare’s Pizza, we listened to our Marketing 101 professor.
He waxed on about demographics and American consumption. We doodled in our spiral notebooks.
What I remember most is that he told us the range of consumption occurred between the ages of 18 and 65. That’s when Americans had the most disposable income to spend.
The implication was that life, purpose, and relevance stopped after that. After retirement. After 65.
Of course, these days, life expectancy–for those who live to be 65–is more promising. But nothing is guaranteed.
At any age, “seize the day” is a smart strategy. Especially in your later years when (at times) it feels like you are riding in a runaway wagon racing downhill. Even if on most days you are enjoying the freedom and wisdom that comes with age as the wind rushes through your greying hair.
All of this is preamble to tell you that I am on the cusp of publishing my 5th book. It will be a collection of my best poems. Many of them explore love, loss, identity, discovery, disorientation, transformation, realization, and acceptance–spun through the ever-present influences of time and nature.
I began writing poetry in 1993. I was newly divorced, raising my boys as a single dad, working long hours as a communication consultant for Towers Perrin in Chicago, dashing for commuter trains, grieving the loss of my father, and beginning to understand myself and my emerging gay identity.
I have written dozens of poems over the past 30 years. Stashed them in an ever-expanding Word file. (If you follow me, you know I have shared some of them here over the past four years. The act of doing that has fed the poetry beast inside me. He’s now ready to emerge.)
Yes, at age 65 it thrills me to defy the logic of my marketing professor. To assemble my poetry and share it publicly–all in one place–for anyone who chooses to consume it.
On March 25, 2023, I will participate in the Phoenix-area Heart Walk, sponsored by the American Heart Association.
If you follow my blog, you know I am a heart attack survivor. You may not know that both of my parents died of heart disease: Mom on January 26, 2013 (almost ten years ago); Dad on November 26, 1993 (nearly thirty years ago). Both Helen and Walter appear frequently in my published stories.
One of my favorite photos of Mom and Dad, celebrating her twenty-sixth birthday on July 26, 1949, at a restaurant in Texas.
Obviously, heart disease is personal for me and millions of American families. I hope you will consider making a donation to support ground-breaking research that keeps hearts beating and enables other unsuspecting victims of heart disease and stroke (like me) live longer and write new chapters.
As an added incentive, if you click the link below and donate $30 to the American Heart Association, I will sign and send any two of my books (your choice) to you. I’ll pay the postage and include two of my personalized bookmarks.
On Saturday and Sunday, I stood on stage at the Galvin Playhouse in Tempe, Arizona, with about forty fellow members of the Phoenix Gay Men’s Chorus.
From the tenor two section of the top riser, I was dressed in black pants and my snazzy, solid-red holiday sweater. I was ready to raise my voice, have fun, open my heart, and bear my soul for two large, enthusiastic audiences there to see and hear us perform our ‘Twas the Night Before Christmas show.
As you might expect, I was amped up. My energy and emotions were running high. On stage or not, the holiday season can spur a range of feelings–from joy, hope, and peace to sorrow–for each of us.
Often, the music we hear or create is the catalyst for our state of being. It reminds us of who we are, who we love, who we’ve lost, where we’ve been, where we are, and maybe even foretells where we’re going.
Like life, this was a holiday concert that included a little of everything: luscious chords, soaring solos, a tribute to Hannukah, hot men wearing sparkly vests, a surprise tap dance underneath the tree (in the ‘Twas the Night Before Christmas parody I wrote for the show), a caped gay superhero, a Christmas Can-Can not to be believed, sexy Santa Baby, assorted musical mash ups, and inspirational tunes.
The program was a delight to perform, and the crowds loved it. I felt thrilled and honored that about thirty family members and friends attended. One of them was Jeff.
Over the past three years, he and his husband Dave have become close friends for Tom and me. We’ve met for dinner frequently. Watched movies and played games together. Laughed and swam in their backyard pool. Shared funny stories from our past lives.
In March, Tom and I were honored to join Jeff and Dave and about thirty other friends to celebrate their fortieth anniversary. In October, they drove to Barnes & Noble in Mesa to be there for my book signing. Dave was a regular reader of my blog. He brought up my writing frequently. Each time, I was touched.
On Sunday morning, between the two holiday concerts, Jeff texted to tell Tom and me that Dave passed away Saturday night. He succumbed to complications of muscular dystrophy–a disease he lived with for many years. It confined him to a wheelchair, but–in the time I knew Dave–his disability never dampened his kind spirit, playful energy or warm smile.
I’m sad and stunned. I will miss my friend. On Sunday, as I sang Grown Up Christmas List on stage, I thought of Dave and all he must have endured. That song usually makes me cry anyway, but when I saw others in the audience tearing up, I fought hard to hold it together.
Of course, Jeff knows Tom and I are there for him as he grieves the loss of his long-time husband and loving companion. We will check in on him frequently.
This is just the latest personal reminder to sing and dance. Hug and kiss the ones you love. Fight hard for your convictions. Stand tall in the face of adversity. Raise your voice. And, if you are dealt a difficult hand, find a way to accept the unacceptable.
As a tribute to Dave, what follows is the full text of ‘Twas the Night Before Christmas (A Gay Love Story), which I wrote for the Phoenix Gay Men’s Chorus in July 2022.
It’s a parody, which Tony Crane and Tim Gorka (who played Uncle Gabe and Nephew Jay respectively) performed masterfully during our show in Tempe over the weekend.
Had he seen it, Dave would have laughed out loud and loved it.
Rest in peace, my friend.
***
‘Twas the Night Before Christmas (A Gay Love Story)
I confess. Like many independent writers, I dream of dozens of rave reviews online from readers and a steady stream of royalties.
But that rarely happens. Most of us are not that fortunate. It doesn’t mean our books aren’t worthy of praise and financial rewards. It just means that it is difficult to remain visible and compelling without a marketing budget. The literary competition runs wide and deep in the Amazon distribution ocean of new and old releases.
Even so, behind the scenes–when someone buys one or more of my books on Amazon–royalties appear on my author dashboard and land magically in my checking account a few months later.
It isn’t the amount that makes me happy. (It’s usually a trickle, no more than five or ten dollars, though in a rare month the dollars can spike higher.) It’s the acknowledgement that someone continues to derive value and meaning from one of my “very creative, heart-warming stories.”
That phrase in quotes is the way the staff at Barnes & Noble in Mesa, Arizona describes my books on their shelves. When I saw this, I felt honored because the motivation for my writing comes from my heart and the myriad of emotions–love, loss, happiness, discontent, hope, disappointment–we all feel.
Recently, a development director with the American Heart Association (AHA) in Arizona asked if I would be an Executive with Heartto help raise money for their 2023 campaign. Without hesitation, I said “yes.”
Technically, it runs from February 1 through March 24 and concludes with a Heart Walk in the Valley of the Sun. But on “Giving Tuesday” this year (November 29) I will donate the $200 in book royalties I have earned in 2022 to the AHA to help support the fight against heart disease and stroke. An anonymous donor will match that amount.
Ironically, in the coming few months, I will remember both of my parents who succumbed to heart disease. My dad died after suffering his second heart attack on November 26, 1993. It was the day after Thanksgiving twenty-nine years ago. My mother passed on January 26, 2013–nearly ten years ago on a frigid Illinois morning–due to congestive heart failure.
In their honor, I will increase my $200 donation to the AHA by $10 for every purchase of An Unobstructed View between now and November 29. In case you don’t know, the book is a personal account of my transformative journey with Tom, moving from Illinois to Arizona in 2017 and navigating a frightening detour in St. Louis in between. It’s my heartfelt story of survival.
I hope you’ll purchase a copy for yourself or a friend. When you do, you will fill my heart with joy and benefit others–like me–who are building strong hearts and longer, more meaningful lives.
Over the next few weeks as we celebrate the Thanksgiving holiday in the United States, I encourage you to also give thanks for those you love and those who love you … and the heart that beats inside you every moment of every day.
I lead a fortunate life. I don’t mean that in a material, financial or social sense; like many of you, I am concerned about inflation, the bear market, high gas prices, potential fall-out from the mid-term elections, and global and domestic horrors eroding personal freedoms, savings and investments, and a general sense of security for you and me.
Still, I acknowledge I have more to be thankful for than most people: a modest-but-comfortable home in a warm climate; a loving and supportive spouse; two adult sons who are gainfully employed and contributing members of society; a diverse community of friends; and the time to pursue and develop my literary and musical interests.
Plus, I’m a relatively healthy, sixty-five-year-old male. I make it a priority to exercise regularly, eat smart, and see my doctors as needed. Though it’s been more than five years since I suffered a mild heart attack, I haven’t forgotten the trauma of July 6, 2017, or dismissed the gratitude I feel for that team of doctors and nurses at Barnes-Jewish Hospital in St. Louis, Missouri–people I likely will never see again.
That painful experience no longer defines me. It has paled somewhat. Yet it informs my choices, perspective, and sense of gratitude. It has morphed into a badge of survivorship, which I feel an obligation to share with the universe through my writing and day-in-day-out personal encounters.
Occasionally, I receive a fund-raising or participation request from an Arizona contact with the American Heart Association (AHA). We met in 2018.
A few weeks ago, she asked me to share my story of survival–virtually–with employees of a large retail organization on October 17. To explain that donations to the AHA aid lifesaving research that allows heart and stroke survivors–like me–to enjoy longer and more complete lives.
So that’s what I’ll be doing on Monday. Twice … once in the morning; once in the afternoon. Telling my story of survival in three to five minutes to a large group of employees via video conference.
I figure it’s the least I can do to pay it forward and possibly ease the pain for some other unsuspecting man or woman, who with the help of the AHA might live longer, breathe more easily, and witness a few more breathtaking sunsets in the Valley of the Sun or elsewhere.
On October 5, 2022, I captured this Sonoran sunset in Papago Park on my walk with Tom a mile from our home in Scottsdale, Arizona.
When I auditioned for the Phoenix Metropolitan Men’s Chorus in August 2017–six weeks after I suffered a mild heart attack on the way west–we were both on the cusp of a transformation.
At sixty, I was searching for a new place to renew my love of singing (after seven years performing with Windy City Gay Chorus in Chicago); the chorus was twenty-six, preparing to spread its wings and a few years away from embracing a more public gay identity: the Phoenix Gay Men’s Chorus.
On Saturday evening, October 8, I stood on stage with about fifty of my chorus mates at the Kroc Center in south Phoenix. We performed our Mosaic of Voices concert. It was our tribute to triumphant stories shared by members of the Phoenix LGBTQ community–told through the power and inspiration of music.
I wore two hats for the occasion. Figuratively, I mean. I sang second tenor from the top row of the risers and realized a new creative wrinkle; I wrote the lyrics for three of the original songs we performed in the first set: Hope’s Trail, Our Second Act, and Mighty Mosaic. David E. Weck composed all of the music beautifully.
The first two were adapted from compelling, emotional, and personal stories submitted by Garry and Nico, members of the community. When I first read their stories in 2021 and began to develop lyrics, I felt it was important to honor and include many of their actual words in my lyrics. In turn, David then nurtured and shaped them into music.
The third song, Mighty Mosaic, began as a poem I wrote, specifically for the Mosaic of Voices concert. I created it to represent the rich, diverse, and sometimes-circuitous lives we lead in the LGBTQ community.
After last night–with its unveiling on stage before an appreciative audience of a few hundred–you might be inclined to call Mighty Mosaic an anthem. (It certainly felt inspiring for me to write it on June 2, 2021, and then sing it on October 8, 2022.) It celebrates who we are and what we believe. Here it is in its original form, before my words met David’s artful music.
***
Mighty Mosaic (Copyright 2021 Mark Johnson)
Morning, noon, and night, the fabric of our winding threads and uncertain spools form a fluid tapestry of brilliant and imperfect hues.
The pathways of our lives weave. This is who we are. This is what we believe.
In the heat of the day, our worn but sturdy strands lead us down rabbit holes, but–if we keep the faith–the enduring threads carry us through.
The pathways of our lives weave. This is who we are. This is what we believe.
We may travel from a foreign home or body, but when our identities emerge, they awaken our lonely spirits, they blend beautifully.
The pathways of our lives weave. This is who we are. This is what we believe.
Our jagged journeys–our truth trails from the pain of stark midnight to the peace and stillness of lavender daybreak–make us mighty.
The pathways of our lives weave. This is who we are. This is what we believe.
Gay, trans, straight or bi–black, brown, or white … single, attached, or married … young, old, or in between–this is our mosaic and the moment we celebrate what it means.
The pathways of our lives weave. This is who we are. This is what we believe.
Like any and every significant life moment, Saturday afternoon at Barnes & Noble in Mesa on S. Val Vista Drive produced a series of visual snippets–memories which today on the day after (and hopefully, always) cascade through my tired, but appreciative brain.
It was a quiet, yet meaningful, experience for this independent writer–connecting with a handful of aspiring writers and avid readers (unfamiliar with my stories).
Best of all, I was the fortunate recipient of another giant dose of love from family and close friends here in the Valley of the Sun.
Thank you, Tom, Glenn, Dave, Jeff, Nick, Anastasia, Libby, Gregor, Ron, Carol, Merrill, Torie, Jasmine, and Tashi. It was a thrill to sign my books for you and feel the warmth and encouragement of your creative spirits.
Back in July, I wrote a story about Barnes and Noble stocking my memoirs on its shelves in Mesa, Arizona.
A month or so later Rachele, the community relations manager, invited me to sign my books there.
It will happen on Saturday, October 1, from 1 to 3 p.m. at their Dana Park store, located at 1758 S. Val Vista Drive. I’ll even have the opportunity to read a few passages.
(No, it hasn’t sunk in that this independent writer will have this blissful moment in a large bookselling space among the work of more-renowned writers.)
Anyway, I realize most of you who follow my blog don’t live in the Valley of the Sun. But if you do–and you’re looking for a creative outlet this weekend and a story or two to add to your fall reading–stop by.
Mark Johnson Stories 